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DAY ONE

12 noon

WELCOME AND DANISH BUFFET LUNCH

3.30 p.m.

Special Interest Groups.  Choose from:

1. Usher Travels - Dorte Eriksen, Eliza McEwin and Russ Palmer

2. Usher in your Family - Mark Dunning

3. Psychological aspects of Usher syndromes - Connie Miles

1.00 p.m.

Introductions, notices and communication check (there will be short communication breaks at intervals throughout the afternoon)

4.30 p.m.

Questions and discussion about any aspect of today’s programme. 

1.20 p.m.

Treatments and clinical trials - Professor William J Kimberling, Ph.D, Center for the Study and treatment of Usher syndrome, Boys Town National Research Hospital

Questions and discussion

4.45 p.m.

CLOSE

2.20 p.m.

COMMUNICATION BREAK

6.30 p.m.

Meet in the hotel bar for drinks

2.30 p.m.

Introduction to social-haptic communication - Riitta Lahtinen PhD., communication researcher, The Service Foundation for the Deaf & Russ Palmer, Music Therapist

7 p.m.

Dinner together in the restaurant, Hotel Hvide Hus

3 p.m.

TEA BREAK

DAY TWO

9.30 a.m.

Notices and communication check

12.30 p.m.

LUNCH

9.45 a.m.

Different hearing and vision outcomes in Usher siblings - Prof Claes Möller, Audiology Department, The Swedish Institute for Disability Research, University Hospital, Orebro, Sweden

Questions and Discussion

1.30 p.m.

Children and young people with Usher - Transitions in Education - Bettina Kastrup Pedersen (plus Usher person or parent of young Usher?)

10.45 a.m.

COFFEE BREAK

2.15 p.m.

Workshops.  Choose from:

1.  Ushers Only group - Eliza McEwin

2.  Friends and Families of Ushers – Riitta Lahtinen

3.  Professionals - working with Ushers; liaising with each other - international collaboration?

11 a.m.

Health, Nutrition and Usher - PhD students from Orebro University Hospital, Sweden

3.15 p.m.

TEA BREAK

11.45 a.m.

Usher Coalition website - the relationship between family support and research - Mark Dunning

3.45 p.m.

Questions and discussion about any aspect of today’s programme. 

The Usher Study Group - what next?

12.15 p.m.

Feedback from the Usher conferences in Valencia and Seattle - Mark Dunning and Bettina Kastrup Pedersen

4.30 p.m.

CLOSE OF USHER STUDY GROUP